Launch of new patient and public involvement handbook

Published by Arthritis Research UK | 26 July 2017

Have you thought about involving people with arthritis in your research but aren’t sure how to go about it? Have you been looking for examples of good patient and public involvement (PPI)? We’re delighted to announce the publication of our new handbook, Patient and Public Involvement – a Researcher’s Guide (PDF 8.2 MB), which can answer all of these questions and more.

In line with our strategy, our focus is to put people with arthritis at the heart of everything we do and ensure our decisions are guided by their perspective. Evidence has proven that meaningful patient involvement increases the quality of research and helps to ensure that studies with patient participation are as safe, sensitive and ethical as possible. In clinical research, patient involvement can improve participant recruitment and retention.

Our new handbook aims to support you to integrate PPI in your work so that it enhances your research. It contains information on:

• Why you should involve people with arthritis in your research
• guidance for basic researchers
• guidance for clinical researchers
• top tips on how to meaningfully involve people with arthritis
• case studies
• useful resources. 

Professor Luke O’Neill, Chair of our disease subcommittee, comments “Having patient insight partners in committee discussions has been a really positive move. They cut through jargon and ask the simple but important questions that we scientists rarely do”.

The handbook complements our PPI and communication training workshops. These workshops are open to any researchers receiving funding from Arthritis Research UK and the next workshop for will take place in Chesterfield on 11 September 2017. There are a small number of spaces left so if you would like to sign up, please contact the research involvement team.

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